Multiple myeloma is the second most common blood cancer. Yet the majority of patients have never heard of it until they are told they have the disease. To help raise awareness, the International Myeloma Foundation (IMF) in 2009 declared March “Myeloma Awareness Month.” Last year over 60 cities and four states did the same. Increasing awareness of this devastating disease can lead to increased funding for research and ultimately save lives. Awareness can lead to patients asking whether their doctor has considered myeloma as a possible cause for their symptoms and can lead to earlier diagnosis.
Having your hometown, county or state declare March as Myeloma Awareness Month is much simpler than you may think. It requires your town or county council to pass a non-binding resolution. Once you sign up you will receive the MAM Proclamation Toolkit and a MAM Proclamation Leadership Team Member will be in touch to guide you through the process.
Step by Step
1. Find a Champion in your Local Government to Introduce the Resolution. Whether you want to pass a resolution at the town, county or state level, you will need to have a government official to shepherd the resolution through the process. Ask the folks in your support group if they know someone who could be helpful (council member, mayor, state legislator, etc). Or partner with a local hospital, wellness center or another cancer support group to ask if they have any allies at that level of government. If not, you will need to do some research. (Refer to guide to finding your local council member.)
2. Contact your Champion. Once you identify the government official to lead the charge, find people who live in his/her district. Every governing body has their own path to getting measures passed. You will want to ask for the timeline in their governing body and if there are any other members you should speak to before a vote to ensure passage. Take any necessary actions promptly and report to the sponsor if necessary.
3. Day of the Hearing. The Support Group Leader, or whoever has taken on leading this effort for your group, should make sure to sign up to speak during the public comment portion of the evening. It is a good idea for the speaker to have a written statement. The speaker should briefly explain whom they represent (IMF and the name of the support group), why they support the resolution and the importance of it to the council members and community/state. (Refer to template speech.)
4. Media. Once the resolution you know the proclamation will be signed, make sure all MAM events are publicized in the media. (Refer to Media Tips) Immediately send out a press release telling what was passed, what organization proposed it, who the primary sponsor was, and mention any other individuals who were instrumental in its passage. Publicity is the way to make your community more aware of Multiple Myeloma. It will also show those who voted for the resolution you are grateful to them and you are taking action on the measure they spent time passing for you. We will provide you with a generic press release that you can customize and submit to local papers.
Click here to email Aimee Martin with your name, email, town and one of the MAM Proclamation Leadership Team will send you all the materials you need to succeed!
MAM Proclamation Leadership Team 2014
Cindy Ralston, Kansas
Linda Huguelet, Tennessee
Jack Aiello, California
Mary Polancih, Wisconsin
Laura Mooney, New York
Josephine Diagonale, Delaware
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